Language is a powerful tool that shapes our perceptions and interactions. In the context of the Intellectual and Developmental Disabilities (I/DD) community, the words we choose can significantly impact individuals’ dignity, self-worth, and sense of belonging. First-person language, also known as person-first language, places emphasis on the individual before their disability, underscoring the idea that a person is not defined by their disability. This blog post explores the importance of first-person language in the I/DD community and how it fosters respect and inclusion.

Understanding First-Person Language

First-person language prioritizes the individual over their condition. Instead of saying “a disabled person,” we say “a person with a disability.” This subtle shift highlights the person first, acknowledging their humanity and individuality before their disability. It’s a simple yet profound way to promote dignity and respect.

The Impact of Language on Perception

The words we use can either empower or marginalize. Using first-person language conveys that the individual is more than their disability—they have strengths, interests, and a unique personality. This approach challenges stereotypes and misconceptions, fostering a more inclusive and accepting society.

For example, consider the difference between saying “an autistic person” and “a person with autism.” The latter emphasizes that autism is just one aspect of who they are, not the defining characteristic. This perspective encourages others to see beyond the disability and recognize the person’s full humanity.

Promoting Dignity and Respect

First-person language is a crucial step in promoting dignity and respect for individuals with I/DD. It helps to dismantle harmful stereotypes and reduces the stigma associated with disabilities. By choosing our words carefully, we affirm the value and worth of each person, regardless of their abilities.

First-person language is essential in professional settings such as healthcare, education, and social services. It demonstrates respect for the individual and sets a tone of inclusivity and empathy. When professionals consistently use first-person language, it can significantly improve the quality of interactions and support provided to individuals with I/DD.

The Movement to End the “R” Word

Another critical aspect of respectful language in the IDD community is the movement to end the use of the “R” word. Historically, the term “retarded” was used in medical and educational contexts to describe individuals with intellectual disabilities. However, over time, it has devolved into a derogatory and hurtful slur, often used to demean and ridicule people with disabilities.

The Origins of the Movement

The movement to eliminate the “R” word began as a grassroots effort by individuals with disabilities, their families, and advocates who recognized the damaging impact of the term. This movement gained significant momentum with the “Spread the Word to End the Word” campaign, launched by Special Olympics and Best Buddies in 2009. The campaign aimed to raise awareness about the harmful effects of the “R” word and encourage people to pledge to stop using it.

The Impact of the “R” Word

The “R” word is not just an outdated term; it is a source of pain and stigma for many individuals with I/DD. Using this word continues negative stereotypes and reinforces the idea that people with disabilities are less valuable or capable than others. It can lead to feelings of shame, exclusion, and low self-esteem among those who are targeted by this language.

Advocacy and Legislative Changes

The advocacy efforts to eliminate the “R” word have led to significant changes at both societal and legislative levels. Many organizations, including schools, healthcare providers, and media outlets, have adopted policies against the use of the “R” word. Additionally, legislation like Rosa’s Law, enacted in the United States in 2010, replaced the term “mental retardation” with “intellectual disability” in federal health, education, and labor policies.

Promoting Respectful Language

Ending the use of the “R” word is part of a broader commitment to promoting respectful and inclusive language. Here are some ways to support this movement:

1. Pledge to Stop Using the “R” Word: Join the thousands of individuals who have taken the pledge to eliminate the “R” word from their vocabulary. Encourage others to do the same.
2. Educate Others: Share information about why the “R” word is harmful and the importance of using respectful language. Engage in conversations with friends, family, and colleagues to spread awareness.
3. Support Advocacy Efforts: Get involved with organizations that advocate for the rights and dignity of individuals with disabilities. Support their campaigns and initiatives to promote inclusive language.
4. Lead by Example: Consistently use respectful language in your own interactions and gently correct others when they use the “R” word. Model the change you want to see in society.

The movement to end the “R” word is a vital component of fostering respect and inclusion for individuals with intellectual and developmental disabilities. We can create a more compassionate and understanding world by eliminating harmful language and promoting first-person language. Each of us has a role to play in this movement—by choosing our words carefully, educating others, and advocating for change, we can make a profound difference in the lives of those in the I/DD community. Let’s use language that uplifts and respects every individual, recognizing their inherent worth and unique contributions.

Empowering Self-Identity

Language plays a critical role in self-identity for individuals with I/DD. When people around them use first-person language, it reinforces their sense of self-worth and autonomy. It empowers them to see themselves as individuals first, with their disabilities being just one part of their identity.

Adopting first-person language also benefits families and caregivers. It encourages a more positive and respectful approach to caregiving, fostering stronger and more supportive relationships. Families can better appreciate their loved one’s unique qualities and contributions by emphasizing the person first.

Steps Towards a More Inclusive Society

Adopting first-person language is a simple yet impactful way to contribute to a more inclusive society. Here are some steps to help integrate this approach into everyday interactions:

1. Educate Yourself and Others: Learn about the principles of first-person language and share this knowledge with friends, family, and colleagues.
2. Practice Consistently: Make a conscious effort to use first-person language in all your interactions, both personal and professional.
3. Encourage Others: Gently correct and guide others when they use language that is not person-first. Encourage them to adopt more respectful and inclusive language.
4. Advocate for Change: Support policies and practices that promote the use of first-person language in organizations and institutions.

Language is a reflection of our values and attitudes. By embracing first-person language, we take a meaningful step towards a more respectful and inclusive society for individuals with IDD. It reminds us to see the person first, to recognize their inherent worth, and to appreciate their unique contributions. Let us all commit to using our words to uplift and empower, fostering a world where everyone is valued for who they are.

Posted by:

Dr. CJ Cook, DBA

As Program Administrator, CJ is responsible for the proactive oversight of various units within IRC, including Community Management, Service Access and Equity, and Training and Development. CJ's oversight extends to Language Access and Cultural Competency (LACC), Community-Based Organizations (CBOs), equity in the Purchase of Service (POS), and the National Core Indicator (NCI) project. Furthermore, CJ is tasked with managing the IRC's Performance Contract with DDS and overseeing Emergency Services.